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A Little Love Story
Roland Merullo
1400048672
August 2005
Hardcover
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From Publishers Weekly
Merullo, author of the Revere Beach series, starts out with a hoary cliché: Jake Entwhistle, on the one-year anniversary of his girlfriend's death, goes out for a doughnut, and his '49 Dodge truck gets smashed in the parking lot by cowboy-booted, 27-year-old Janet Rossi. Chemistry wins out over a series of first-date pratfalls, and Entwhistle, a handsome, successful painter, finds himself smitten. Rossi, however, has cystic fibrosis, and Merullo does his best work in the deceptively lighthearted chapters that follow the lovers trying to shed their romantic baggage on top of dealing with Rossi's illness. Entwhistle must overcome his jealousy over Rossi's affair with the governor of Massachusetts (she's still his aide), and he must also finally mourn the late Giselle (an attendant on the flight that went...


Cystic Fibrosis
Wayne Kepron
1552977404
Jan 2003
Paperback
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Pamela Ortega, E-Streams 08/2004
The book is very easy to understand and provides an excellent overview of coping with this disorder.

Book Description
Cystic fibrosis afflicts approximately 30,000 Americans. The average age of survival has been steadily increasing, but not quickly enough: a child born with cystic fibrosis today can only expect to live 35 to 40 years. In this valuable new addition to the Your Personal Health series, Dr. Wayne Kepron offers a comprehensive look at the disease that afflicts so many young people. Topics include: - Symptoms of cystic fibrosis - Making a diagnosis - Complications of the disease - Treatments (including lung transplants) - Techniques and precautions in lung care - Transition into adulthood - Prospects for gene therapy - End-of-life issues Using...


Breathing for a Living: A Memior
Laura Rothenberg
1401300596
July 2003
Hardcover
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Book Review
It would be easy to assume that the story of Elizabeth Rothenberg's battle with cystic fibrosis is one of a brave young woman staying constantly positive in the face of tremendous adversity. But situations such as hers are rarely that simple. Thankfully, the portrait that emerges in her memoir, Breathing for a Living, is that of a complex and very real human being who experiences joy, anger, despair, and hopefulness while struggling to live the kind of normal life most of her fellow college students take for granted. And while her candor is admirable, what makes Rothenberg a remarkable author is her dedication to just getting words written down on the page at times when many would simply retreat from the world. Through an agonized process of waiting for a lung transplant, she writes down exactly what she's feeling. She...


The Cystic Fibrosis Transmembrane Conductance Regulator
Kevin L. Kirk
0306478374
Jan 2003
Hardcover
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Book Description
The CFTR chloride channel is one of the most well studied transport proteins in biology. Yet there remain many mysteries about the functional properties and biological roles of this ABC transporter. The Cystic Fibrosis Transmembrane Conductance Regulator addresses a select series of `hot' topics that relate to the function of CFTR, and the links between CFTR dysfunction and human disease (i.e., cystic fibrosis). The timeliness of these topics distinguishes this collection from previous volumes of this type. Given the general interest in CFTR, this collection will appeal to a broad readership with interests in CFTR, cystic fibrosis, ion channels and ABC transporters.


Cystic Fibrosis
Melissa Abramovitz
1590182995
March 2003
Hardcover
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Review
Booklist : "Captioned photos and diagrams illustrate each book and both volumes have source notes, a list of organizations and Web sites, and a bibliography that will be useful for report writers, debaters, and parents of children diagnosed with these disfunctions."
-- Booklist (October 2001)
Library Media Connection : "These books provide the kind of information that a student may need either for an assigned research project or for personal enlightment and assistance. Highly Recommended"
--Library Media Connection, October 2005
School Library Journal : "Volumes explore causes, symptoms, diagnosis, and treatment. New research techniques are described in detail. Each disorder is fully explained in non-technical terms."
-- School Library Journal (March 2003)
School Library...


Cystic Fibrosis
Margaret E. Hodson (Editor)
0340742089
August 2000
Hardcover
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Book Description
This comprehensive revision of the well-received first edition provides everything that a clinician treating patients with cystic fibrosis will need in a single volume. A substantial amount of new information has accumulated during the last five years, ranging from advances in the basic
scientific understanding of the condition, through novel treatment options to improvements in the delivery of care both in the hospital and the home. To reflect these developments, new chapters have been added on diagnostic genotype/phenotype correlations, screening, reproductive issues, surgery,
quality of life and health economics, while other areas such as the organization of home care have been expanded. Edited by two senior physicians from one of the largest cystic fibrosis centers in the world (London's Brompton Hospital)...


Psychosocial Aspects of Cystic Fibrosis
Myra Bluebond-Langner, et al
0340758910
January 15, 2001
Hardcover
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Book Description
(Arnold) Rutgers Univ., Camden, NJ. Discusses the psychological impact of cystic fibrosis on individuals with this illness, and their families. Considers new approaches to issues including adherence to therapy, communication within families, staff burnout, and education and counseling. For clinicians and researchers.

Book Info
(Arnold) Rutgers Univ., Camden, NJ. Discusses the psychological impact of cystic fibrosis on individuals with this illness, and their families. Considers new approaches to issues including adherence to therapy, communication within families, staff burnout, and education and counseling. For clinicians and researchers.


The Nhs Experience
Hilary Cass
0415336716
Jan 2006
Hardcover
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Book Description
At once a novel and a guidebook, this unique book takes the reader on a fictional journey through the life of Daniel, a child with cystic fibrosis. Based on the successful Snakes and Ladders drama programme developed at Great Ormond Street Hospital, The NHS Experience uses the story of Daniel and his family to provide insight into the challenges faced by those involved with the NHS, in whatever capacity.

Illustrating issues central to improving patient care, Daniel's story initiates discussions on topics such as:
o The practical, ethical, resource and financial dilemmas integral to the NHS.
o The need for trust between individuals, professionals and organizations connected to the NHS.
o Communication, management of clinical errors, the ethics of consent and bereavement care.
o Fragmented...


Cystic Fibrosis
Dennis J. Shale (Editor)
072790826X
January 2002
Hardcover
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Alive at 25: How I'm Beating Cystic Fibrosis (Understanding Health and Sickness Series)
Andy Lipman
1563526816


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Cystic Fibrosis Care
Allison Peebles
0443100039
June 2005
Paperback
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Book Description
Written by a team of experts in the field this unique book is a practical guide for the care of cystic fibrosis patients based on day-to-day experience and scientific evidence. Chapters cover every aspect of care from basic daily respiratory and gastroenterology management to the more common complications in cystic fibrosis and includes problem solving more complex issues. Covering all areas of clinical and psychosocial care for the cystic fibrosis patient, Cystic Fibrosis Care is designed to allow quick access to relevant information and is an invaluable guide for physiotherapists, GPs, paediatricians, nurses and dieticians.

About the Author
Allison Peebles, MCSP; Gary J. Connett, DCH, MRCP, MD, FRCPCH, Consultant Paediatrician, EG228 Department of Paediatrics, Southampton...


Little Brave Ones : For Children Who Battle Cystic Fibrosis
Carrie Lux
1419617052
March 8, 2006
Paperback
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Cystic Fibrosis
Judy Monroe
0736810269
August 2001
Hardcover
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From School Library Journal
Grade 5-9-In a succinct, approachable manner, each author discusses the disease, its effect on the body, diagnosis, treatment, how it affects young people who either have it or live with someone who does, and looks ahead to potential breakthroughs. Sentences are simple, topic headings are bold and clear, and complex information is smoothly explained. Inset anecdotes, interesting facts, and personal quotes carry the text along briskly, and the tone is crisp yet comforting. The attractive layout features glossy paper with brightly colored illustrations, highlighted sections, and plenty of white space. In Cystic Fibrosis, Monroe finds a fine balance between the disease's essentially incurable nature and realistic optimism on the part of those afflicted. Noteworthy in Breast Cancer are the clear...


Cystic Fibrosis, Vol. 64
Langdon B. Davis
082478815X
March 1993
Hardcover
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Book Description
Discusses clinical manifestations and available therapies for cystic fibrosis. Amongst other relevant topics, the text examines complications of the disease and treatment strategies, and presents the genetics and genetic epidemiology of cystic fibrosis.


The Official Parent's Sourcebook on Cystic Fibrosis
Icon Health Publications
0497009595
Jan 2005
Paperback
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Download Description
This book has been created for parents who have decided to make education and research an integral part of the treatment process. Although it also gives information useful to doctors, caregivers and other health professionals, it tells parents where and how to look for information covering virtually all topics related to cystic fibrosis (also Fibrocystic Disease of Pancreas; Mucosis; Mucoviscidosis; Pancreatic Fibrosis), from the essentials to the most advanced areas of research. The title of this book includes the word official. This reflects the fact that the sourcebook draws from public, academic, government, and peer-reviewed research. Selected readings from various agencies are reproduced to give you some of the latest official information available to date on cystic fibrosis. Given parents' increasing...


Antimicrobial Peptides and Human Disease (Current Topics in Microbiology and Immunology)
William M. Shafer (Editor)
3540299157
April 2006
Hardcover
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Book Description
Microbes are in our midst soon after birth. Thankfully, the number of harmless (and often beneficial) microbes far out number those that would do us harm. Our ability to ward-off pathogens in our environment, including those that can colonize our exterior and/or interior surfaces, depends on the integrative action of the innate and adaptive immunity systems. This volume of CTMI, entitled Antimicrobial Peptides and Human Disease, is dedicated to the role of antimicrobial peptides (AMPs) in the innate host defense system of homo sapiens.


The 2002 Official Patient's Sourcebook on Cystic Fibrosis
James N. Parker
0597831467
June 2002
Paperback
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Understanding Cystic Fibrosis
Karen Hopkins
0878059679
January 1998
Paperback
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The Spirit of Lo : An Ordinary Family's Extraordinary Journey
Terry Detrich, Don Detrich
0970193408
September 1, 2000
Paperback
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Cystic Fibrosis: A Guide for Patient and Family
David Orenstein
0781741521
November 2003
Paperback
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Book Description
Univ. of Pittsburgh, PA. Text is designed specifically for patients with cystic fibrosis and their families. Explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. Includes new material on carrier testing, infection control, and more. Previous edition: c1997. Softcover.

Book Info
Univ. of Pittsburgh, PA. Text is designed specifically for patients with cystic fibrosis and their families. Explains the disease process, outlines the fundamentals of diagnosing and screening, and addresses the challenges of treatment for those living with CF. Includes new material on carrier testing, infection control, and more. Previous edition: c1997. Softcover.


Cystic Fibrosis - A Medical Dictionary, Bibliography, and Annotated Research Guide to Internet References
Icon Health Publications
0597836175
Oct 2003
Paperback
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Book Description
In March 2001, the National Institutes of Health issued the following warning: "The number of Web sites offering health-related resources grows every day. Many sites provide valuable information, while others may have information that is unreliable or misleading." Furthermore, because of the rapid increase in Internet-based information, many hours can be wasted searching, selecting, and printing.This book was created for medical professionals, students, and members of the general public who want to conduct medical research using the most advanced tools available and spending the least amount of time doing so.

Download Description
This is a 3-in-1 reference book. It gives a complete medical dictionary covering hundreds of terms and expressions relating to cystic fibrosis. It...


Cystic Fibrosis in the 21st Century (Progress in Respiratory Research)
Andrew Bush (Editor), et al
3805579608
October 7, 2005
Hardcover
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Respiratory Diseases & Disorders Sourcebook
Peter D. Dresser
0780800370
Jan 1995
Hardcover
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From Library Journal
These two new volumes follow the same format as previous offerings in the series, compiling documents published by a variety of public and private institutions. According to the prefaces, "the documents chosen present basic medical information for the interested layperson." Cardiovascular Diseases contains pamphlets published by the National Institutes of Health and its sister health agencies and excerpts from publications of the American Heart Association. Subjects covered include descriptions of common heart and vascular problems, statistical and demographics data, drug and surgical therapies, living with cardiovascular disease, and lifestyle changes for healthier living. Respiratory Diseases and Disorders relies on the same government sources as well as the American Lung Association, Cystic Fibrosis Foundation,...


Alex: The Life of a Child
Frank Deford
1558535527
January 1997
Paperback
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